Sunday, May 15, 2011
Ben's Sunday Update
Not really a good day. Ben look very frail when I got to his room this morning and I started to cry. Scott, Ben's respiratory therapist for today noticed me crying and tried to comfort me. He kept telling me that I'm not alone, that God is always with me. I found out later that Scott went to Dr. Vas and told him I was crying and very upset. Dr. Vas came to see me and told me that he understands my frustration about Dr. Shantha telling me Kaiser has to "fix" Ben's problem and then Kaiser telling me there is nothing they can "fix", that Ben's body must heal itself and they have no idea how long that will take. He said he is going to talk to Dr. Shantha about this. He also advised me to contact Kaiser Social Services. I told him I had done that and asked for my social worker (Jennifer) to try to come see me tomorrow in Ben's room. Ben was confused a lot today. Kept telling me he was at home and that I was crazy when I told him he was in a hospital room. He kept asking me if I could drive him home and a couple of times, he said he did not know who I was. At one point, he told me he did not know how much more of this he can take. Well I know how he feels because I feel exactly the same way.
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Yes I know it is so hard on the spouse too. Praying and praying some more that is all I know to do from afar.
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